Ethan Rhodes
Kaleb, the Shriners Hospital ambassador who appeared in commercials and advertisements for the hospital, is now 16 years old. He was born with osteogenesis imperfecta, also known as brittle bone disease, and has broken his bones over 200 times, undergoing 11 surgeries. Kaleb's first surgery was when he was just seven days old, and he has been a Shriners patient ever since. Today, Kaleb is stronger than ever and is learning to stand and walk on his own.
| Characteristics | Values |
|---|---|
| Name | Kaleb Torres |
| Age | 16 years old |
| Health condition | Osteogenesis imperfecta, or brittle bone disease |
| Number of surgeries | 11 |
| Number of broken bones | Over 200 |
| First surgery | 7 days old |
| Hospital | Shriners Children's |
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What You'll Learn
Kaleb Torres is alive and well
Kaleb Torres, a patient ambassador for Shriners Hospitals for Children, is alive and well. In 2021, social media users falsely claimed that Kaleb had passed away. These claims were debunked by a representative for the hospital and a recent video showing that Kaleb is alive and well. The confusion arose because another boy with the same first name, Kaleb Holder, had died, and their stories were mixed up on social media.
Kaleb Torres was born with osteogenesis imperfecta, also known as brittle bone disease. Due to this condition, he has broken his bones over 200 times and has undergone 11 surgeries. Despite these challenges, Kaleb has not let his condition stop him. He is learning to stand and walk and is even stronger than ever.
Kaleb's story has been featured in Shriners Hospitals' commercials and patient stories, where he shares his positive and inspiring journey. Shriners Hospitals for Children provide life-changing medical care to children with various conditions, including orthopedic issues, severe burns, spinal cord injuries, and cleft lip and palate. They rely on the generous donations of people to continue their work and help children like Kaleb.
In one of Shriners' patient stories, Kaleb introduces himself and talks about his condition. He expresses his gratitude for the support he has received from Shriners Hospitals for Children and the donors who make their work possible. Kaleb's story highlights the impact of compassionate and innovative care on children's lives and their families.
Kaleb Torres is a brave and inspiring young man who is overcoming the challenges of brittle bone disease. His story, as shared by Shriners Hospitals, brings attention to the importance of medical care and support for children facing various health conditions. It is wonderful to know that despite the rumours, Kaleb is alive and well, continuing his journey towards a stronger and brighter future.
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Appeared in Shriners advertisements throughout his childhood
Kaleb, the patient ambassador for Shriners Hospitals for Children, has appeared in advertisements and appeals to donors throughout his childhood. Kaleb was born with osteogenesis imperfecta, also known as brittle bone disease, and has broken his bones over 200 times, undergoing at least 11 surgeries. He had his first surgery when he was just seven days old and has been a Shriners patient ever since.
Kaleb's story is one of courage and resilience. Despite his condition, he hasn't let it hold him back. Thanks to the specialized care and support from Shriners, he has been able to achieve milestones such as riding a bike, climbing, and racing. He is now learning to stand and walk on his own, and his strength continues to grow.
In one Shriners advertisement, Kaleb shares his story and expresses gratitude for the impact of generous donations on his life and the lives of other children facing similar orthopedic conditions, severe burns, spinal cord injuries, and cleft lip and palate. He credits Shriners Hospitals for changing his life and giving him the opportunity to pursue his dreams.
Kaleb's journey has not only inspired others but also helped raise awareness and funds for Shriners Hospitals. His appearances in advertisements and campaigns have played a vital role in showcasing the impact of donor generosity and the importance of specialized care for children with complex medical conditions.
Today, at 16 years old, Kaleb continues to share his story and advocate for the hospital that has played such a significant role in his life. His courage and determination serve as a testament to the power of specialized care and the resilience of the human spirit.
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Has osteogenesis imperfecta, or brittle bone disease
Osteogenesis imperfecta (OI), also known as brittle bone disease, is a genetic disorder that causes bones to be weak and break easily. It is a rare disease, affecting only about one in 15,000 to 20,000 people. OI is typically inherited, passed on from one or both parents, and is present at birth. It is caused by a defect in the genes that carry the instructions for making type I collagen, a substance that helps to make bones strong. This defect can lead to a reduction in collagen production or abnormal collagen that does not function properly, resulting in weak and brittle bones that are susceptible to fractures.
The symptoms of OI can vary greatly, ranging from mild to severe. Some individuals with OI may only experience a few broken bones in their lifetime, while others may suffer from hundreds of fractures. In some cases, fractures can occur before birth. Mild forms of OI may be difficult to diagnose in infants, and a healthcare provider may refer to specialists for further evaluation and treatment.
There are several types of OI, including Type I, which is the least severe and most common form. Other types, such as Type IV, V, and VI, can exhibit moderate to severe symptoms, including enlarged thickened areas (hypertrophic calluses) near fractured bones. Type VI is very rare, while Type VII is associated with shorter than normal height and shortened upper arm and thigh bones. Type VIII is characterised by very soft bones and severe growth problems. The recently discovered Type XIX is an X-linked genetic disorder resulting from a mutation in the MBTPS2 gene.
The primary goal of OI treatment is to prevent deformities and fractures. Bisphosphonate medications, such as pamidronate, are often used to increase bone density and strength. These medications can be administered orally or intravenously. Additionally, lightweight casts are used to treat fractures, and early mobilisation of the affected area is encouraged to prevent further complications. In some cases, rodding surgery during childhood may enable individuals with severe OI to gain the ability to walk.
Kaleb, the child featured in the Shriners Hospital commercial, has osteogenesis imperfecta or brittle bone disease. He has broken his bones over 200 times and has undergone 11 surgeries. Despite these challenges, he is learning to stand and walk, showcasing his strength and determination.
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Has broken his bones over 200 times
Kaleb, a patient at Shriners Children's Hospital, has broken his bones over 200 times due to being born with osteogenesis imperfecta, or brittle bone disease. He first underwent surgery at just 7 days old and has since had 10 more procedures. Despite these challenges, Kaleb has not let his condition stop him. He is now stronger than ever and is learning to stand and walk independently.
Osteogenesis imperfecta is a genetic disorder that causes bones to break easily. It is characterized by fragile bones that can break with little or no trauma. The disease can also cause other issues such as curved bones, scoliosis, short stature, and muscle weakness. The severity of the condition varies, but those with osteogenesis imperfecta often experience frequent bone fractures throughout their lives.
Kaleb's story is a testament to his strength and resilience in the face of numerous challenges. He has endured pain and undergone extensive medical treatment, including multiple surgeries. Despite these difficulties, he remains determined to overcome his condition and lead a fulfilling life.
Shriners Children's Hospital has played a crucial role in Kaleb's journey. The hospital provides life-changing medical care and support to children with orthopedic conditions, severe burns, spinal cord injuries, and cleft lip and palate. Through the generosity of donors, Shriners is able to offer innovative and compassionate treatment, helping over one million children like Kaleb to reach their potential.
Kaleb's positive attitude and determination have helped him overcome the challenges of living with brittle bone disease. He serves as an inspiration to others facing similar struggles, proving that it is possible to persevere and thrive even in the face of significant obstacles.
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Had his first surgery at seven days old
Kaleb, the subject of the Shriners Hospital commercials, was born with osteogenesis imperfecta, also known as brittle bone disease. He had his first surgery at just seven days old and has been a Shriners patient ever since, receiving specialised care and support.
Osteogenesis imperfecta is a genetic disorder that results in fragile bones that break easily. Individuals with this condition often experience numerous bone fractures throughout their lifetime. The condition can also cause other issues, such as weak muscles, joint hypermobility, and curved bones.
Kaleb's parents, Marie-Hélène and Alberto, learned about their son's condition when Marie-Hélène was 33 weeks pregnant. They turned to Shriners Children's for specialised care as soon as Kaleb was born. The nonprofit healthcare system has played a significant role in Kaleb's life, providing him with the necessary support and treatment.
Kaleb has broken his bones over 200 times and has undergone 11 surgeries. Despite these challenges, he hasn't let his condition stop him. With the help of Shriners Children's, he has received specialised equipment, physical therapy, and custom-made rods to support his legs. Thanks to this personalised specialty care, Kaleb has made remarkable progress. He can now ride a bike, climb, and race, and he is even learning to stand and walk on his own.
Kaleb's story is an inspiring one, and he has bravely shared it with millions around the world through the Shriners Hospital commercials. Now 16 years old, Kaleb is stronger than ever and continues to overcome the challenges presented by his condition. His resilience and determination serve as a testament to the impact of compassionate and innovative medical care.
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Frequently asked questions
Kaleb is 16 years old as of October 2024.
Kaleb Torres.
Kaleb was born with osteogenesis imperfecta, also known as brittle bone disease.
Kaleb has broken his bones over 200 times.
